It is now mid October and things are still going quite well. I wish I could say that I was completely symptom – free but that is not the case. While I am still able to walk, using the cane, there are a couple of annoying new things that concern me: most times it is hard for me to read because I cannot focus well.
My left leg extends at an unusual angle now, so I must be very careful how I walk. I walk slower now than ever and that's very unsettling. I am thankful however, to still be getting around as well as I do though, and I can see very easily how much family support means to somebody in my position. Lorraine spends at least 90 minutes every single day preparing medicines for me. In addition, we go to the lab three times per week for blood tests, as a monitor my electrolyte levels very closely. Very thankfully, the San Diego weather this time of year is wonderfully pleasant. What, you may ask, does this have to do with me healing?
Remember that we originally signed up for this clinical trial medicine at the Burzynski clinic in Houston. This was done in mid summer. Lorraine and I traveled cross-country to do this, during the worst season possible to visit Houston Texas.
Not only was it too hot to be comfortable even in any air-conditioned car or apartment, but the humidity was so high that my asthmatic lungs could not breathe well. For all these reasons the trip to Houston was horrible for me. I am glad to report that it was worth it... As I have written in other blog posts, the MRI testing of my brain after going through 90 days of treatment or so showed very positive results. Next week, I go in for another MRI and we are praying for similar results, though to be honest, the new symptoms I have are scaring me-as much as I want to keep my head up high. Actually I do keep my head up high, as most days I feel very good! People I meet are always surprised to find that I have stage IV brain cancer. This type of disease has a reputation of scaring people! They expect me to have bloody sores all over my body or something.
Thank God that my family keeps me comfortable physically, and that we are able to pay for the clinical trial that I am involved with. I have no way of telling how I would be feeling without either one of those – but I know it would never be as good as I feel right now. Also, I think everybody reading this blog that is praying for me... I definitely believe in the power of prayer! Jesus Christ is my Lord and Savior, and it is only through Him that I am in was to achieve any healing at all. All prayers in my name are thankfully appreciated!
I do not care in what language you pray or think of me, just that you do both in my name.
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