What a difference a day makes! Yesterday (Thursday) we got confirmation that I was indeed approved to get treated at the Burzynski clinic. After the shock wore off, it's hard to describe the wave of relief my wife and I felt. It was such a long time coming, starting with the first time we were exposed to Burzynski's website and learned of his successes in treating the glioblastoma cancer type which I have. That of course, was back at home in San Diego and we have been away so long that it seems like a lifetime ago. We have been in Houston Texas for over 10 days, Midsummer, under the most extreme emotional circumstances you can possibly imagine. God has provided for us however, at every step of the way by bringing people into our lives that have helped us so much, and in so many ways it's amazing. Mind you many of these people were folks that we did not even know a few months ago!
It’s not possible to measure or explain our gratitude for everybody that contacted Congress for us nationwide. We knew we were on the right track when these officials started writing back to us requesting the specific name of the drug in the trial that I was trying to join. Once we got the specifics sent out via e-mail to these elected officials, the information was forwarded to the FDA on my behalf and I was approved! The treatment that was approved was Antineoplaston therapy, not the combined therapy which included gene targeted medicines. That was my first choice as Dr. Burzynski said he believed it to be my best chance.
I cannot change the FDA's decision however, and I'm very thankful that I was allowed to become part of the Antineoplaston therapy. Immediately the clinic referred me to a local Doctor to have a port installed in my chest to accept the medicines. This sounds scary, and it most certainly was not so comfortable- but what a really entails though is nothing more than them attaching a tube to a vein. This gives the Dr. a place to admit large quantities of medicines into my system without continuously tapping veins in my arm or hand.
So, to recap: approved, plumbed for action, space and ready to go. It is now 8 AM and my first therapy begins at 930 this morning. It has been a long time coming and I owe incredible thanks to friends, family and readers of this blog who have helped us every step of the way.
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2 comments:
GREAT NEWS! will continue to visualize you whole and completely healed...God is GOOD! xoxo =)
hug your angel wife for me!
Love,
Chris
Hi Paul,
We have been following your progress and we are so happy for you on this day!
It is a big step on your quest to fight this battle. We are rooting for you!
Much love and light your way.
Your friends Brian and Thy form San Diego.
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