Monday the 18th I wound up in the hospital one more time. I had uncontrollable chills for an hour after we ate dinner, followed by temperatures of 102.9 The skin on my already swollen leg had a mottled appearance, which Lorraine said had some special significance. That was her deciding factor to bring me into the emergency room.
I have been on antibiotics/IV medicines ever since. It seems they have things under control now, but they still have me on blood thinners because of swelling. On one hand, antibiotics have helped with my condition, yet now they say I never did have an infection since they can't grow culture either from blood or urine. My question is: if there was no infection, then why did antibiotics get rid of my symptoms all week? When I was in the emergency room I had uncontrollable shiver, extremely low blood pressure, and the temperature was103.Now my temperature is normal and all of those other symptoms are gone thankfully. I may get out of the hospital this weekend if my Coumadin levels can be adjusted properly so my brain tumor does not bleed.
Every day we are in the hospital is in other day I am not getting the cancer treatment I need. I try very hard to not get excited or worry about this, but the bottom line is that due to factors out of my control, I think that I have only received the antineoplaston treatment we came here to get for less than two weeks. We have been here for five weeks suffering the Houston summer – and one thing after another has caused interruptions in the treatment from the Burzynski clinic. Even when healthy, a couple of days in emergency can really set you back. My system is not healthy, and even the extreme Houston heat sets me back when I am exposed to too much of it. When I had medical problems before, I was only in the hospital for a couple days. It has now been a week and I have no idea how long it will take me to get back on track.
While here, they had treated me for blood clots in my swollen leg and my chest. I have a stent installed to clean up and collect any clots that come loose from my legs. I am now on blood thinners and other drugs specifically designed to break up clots.
What the doctor is trying to do is bring my Coumadin levels in my blood to 2.5 which is the right number for one that has this type of brain tumor. This assures the blood is thin enough to not clot, yet thick enough to coagulate when needed. When I got here the level was 1.1 and they have increasing the dose of the medicine every other day since then, still trying to achieve 2.5
As of this morning my level is only 1.6 so the Dr. told me I will be here at least through the weekend and that is certainly not the news I wanted to hear!
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2 comments:
Hi Paul, I'm so sorry to see this set back. Maybe you had a virus and not an infection and the fever went away on it's own. The same thing happened to my daughter in June. I hope you can get the Coumadin levels up and you can get the heck out of the hospital. If you and Lorraine need anything at all, we are here for you. You are in our prayers, and hang in there, you will get better.
David
Hi Paul, David has a point-you could have had a virus not a bacterial infection-but the biggest thing now is to get those Coumadin levels in the therapeutic range so you can go back home to San Diego! Hang in there and try to go with the flow of things I know hospitals are NOT FUN and it is hard to truly feel rested when staying in them. I am continuing to visualize you completely and totally healed! God is with you now and always.
love and huge hugs xoxo
Chris
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