Yet another very hot weekend…

It is now Sunday, June 26, 2011.
Yesterday was another hundred degree day with little relief in sight! I feel very relieved to have been seen by Burzinski Clinic within a few short days of arriving in Houston. Now it's a big waiting game; my waiver application has been submitted to the FDA so that I can get admitted into the clinical trial for the type of therapy I need, and traversed the country to get.
It may be three more days before I know the results of my application for the waiver.

Day by day, things have been okay. Lorraine has been taking exemplary care of me and I thank God every day for her and her devotion. Man, did I marry the right woman!
She prays with me, takes care of me, and loves me. What more could a man ask for?
I am extremely thankful that no new symptoms have appeared over the course of this long hard week of travel. I do notice, however, that the heat really takes its toll on me... much more than when I was healthy of course. Even the small amount of time I spend between the apartment and a car seems way too long for me. I stay in the car with the air conditioner on while Lorraine gets my wheelchair out of the trunk. That shortens the time I spend in the wheelchair of course, so that I have the stamina to go into whatever restaurant or store we happen to be going to at the time.

This is been an extremely busy week and one that I know neither Lorraine nor I would want to repeat. The travel to Houston was brutal, and when we arrived, we were greeted by an absolutely enormous city where the freeways make Los Angeles pale in comparison! of course neither of us knew what to expect, but who the heck knew that there could be such a confusing freeway system in a large metropolis. even our GPS gets confused! In fact, very often I feel like tossing it out the window because by the time we realize we have received wrong directions from it, it takes 15 min. of driving to correct the problem. You cannot turn around on any of the streets in town because there is an island in the middle of every one of them. The Texans take traffic control very seriously I guess and they only want you traveling in very specific routes. You cannot, absolutely can not, just realize that you made a wrong turn and go a different direction. You are forced to travel at least a mile up the road in extreme traffic before you can find a place to turn around such as a shopping center! So every time the GPS gives us bad instruction, it causes extreme anxiety and anger. It's bad enough to have to ask a machine which direction to go, and also course bad enough to hear wrong instructions from it, but then by the time you realize it happened it takes you 15 to 30 min. to correct the problem!!

My health has been holding up okay thank God. Other then when I mentioned earlier, about being sensitive to heat, I have very little to complain about. My sense of balance seems to be getting worse every day though, and by 6 PM when I get tired it is very dangerous for me to walk more than just a few steps.

Thank you everybody for reading, and please let me remind you to contact your congressperson Monday , June 27. get them to approve the waiver for me to get Antineoplston therapy. I cannot overstate how critical this is folks, for you to contact your Congress people immediately so that they know how to act when my name comes up for an FDA waiver or variance to guess this Antineoplston therapy approved!

I don't care if you are good friend, a regular reader of my blog, or if this is your first visit! Please contact Congress immediately so that my waiver can be approved. There is a link in the next message on this blog which will allow you to find your congressperson by zip code. Please use it, act appropriately, and most of all pray for my speedy recovery.
Thank you very much

Please remember when you write your congressman or call them, to associate my name (Paul Brustas) with the Antineoplston therapy… Otherwise it's just an exercise in futility. They need to know who is applying for the waiver and that's the waiver is for that type of therapy.
There's no way of telling how many waivers will be asked for, or what they will be for. So please folks, be clear when you contact these busy people, and tell them which type of therapy needs the waiver associated with my name.

Thank you everybody!!
If you choose to, feel free to include a link to this blog -as some others have done-In your communication with Congress. It can't hurt in fact if we can get some clicks on this blog from Congress, perhaps it will make my story more personal and allow them to associate a name with a face so to speak.